Cutest blog on the block

Wednesday, May 22, 2013

Bye Bye Insulet, Hello Medtronic

Well, we officially dumped Omnipod. Any company that cares so little about their existing customers as to not give the new product to their current users, IS NOT in the business of making lives better. But in the business of making money off new customers and saying sorry to the loyal ones.

So, we have officially joined back into the tethered world of cords. Medtronic education, customer care and training is hands down the most professional system I have seen. They are calling me almost weekly to ensure we are doing well and happy. They send us training videos and emails all the time. AND they GUARANTEED us that when the new technology comes out soon we get it for free. And we won't be bypassed for new clients!  It is called the new technology guarantee. Ask for it!

While we aren't fond of being tethered it is much better than losing a pump site every day because it is too big for your skinny child's active little body. 

OMNIPOD Lied to use for months telling us it would be released in Feb, then March, then April, by May I learned my lesson. They didn't care about us. SAD! 

Omnipod feels like a small mom and pop operation compared to Medtronic. Medtronic is one of the largest manufacturers of medical devices worldwide and it shows.

Off my soap box now. But I hope Omnipod learns their lesson from treating customers like they are unimportant.

Friday, March 8, 2013

Putting OMNIPOD makers on notice!!!

Dear Insulet Corporation,

As a customer, with a Type I diabetic 6 year old, I have been a faithful supporter and have been encouraging my friends to try the Omnipod system for two years now. It is unfortunate to realize that you are NOT that loyal to your CURRENT customers. Since the FDA has approved distribution of the new pod system, we have been very excited as our son loses sites often due to the size of the pod on his tiny little body. Bumps and slides on the playground can dislodge the cannula. So, image our dismay to learn that instead of shipping your supplies to existing customers, you are only distributing to NEW customers at this time. In what business model does this make sense? To anger your largest base of revenue just to gain a few new clients a day? We, as EXISTING users, would have been the most logical choice to receive the system first as we can give good, informative feedback based on comparison to the old system. We are your word of mouth! I am very disappointed in the lack of support you have shown to your current clientele in order to bring in new customers by slighting your current customers.

Sincerely,

Mother and Artificial Pancreas for a very fragile diabetic with Crohn's disease as well

Tuesday, January 8, 2013

Crohn's plus Diabetes = DIACRAPPY

Ok, so I haven't blogged in forever..... FORGIVE ME. We need advice.  Any other mommas out there combatting multiple auto-immune diseases with steroids on an insulin pump?

This is a nightmare and I am having trouble deciding the best course of action for combatting our problems.

Animas pump- we had occlusion problems and kept yanking out sites
Omnipod- first 12 hours on the pump he has horrible absorption of insulin

Humalog- crystalized in the pump on us
Apidra- seems to work best in pump first 48 hours and studies show it should be changed after 48 hours.

Do we switch to Novolog?

Go back to shots?

AHHHHH!

Despite my best efforts we are very unstable. He goes super high and crashes super low with only a tiny amount of insulin. His sensitivity is like 1:300.

Frustrated venting and hoping for a friend combatting the horrible steroid problems with DM1.

Thursday, July 21, 2011

Parker's Posse

Hello, blogging world. Hope you didn't forget about us. We have been pumping about 8 weeks now....whew what a whirlwind!  Ups and Downs, Highs and Lows, Normal Stinking Diabetes. We have vacationed and just enjoyed our summer with our Type I diabetic little man. We also got a new puppy to add to the mayhem. She is very sweet and sensitive to the kids, which is great. Parker has done well with the pump this summer, despite the site falling off every time he swims!  Overall, we love the flexibility of pumping and our A1C reflects good things... 6.7!

We have joined the JDRF to help Find a Cure for Type 1 Diabetes and we are walking for a cure in September.  Join us by following the link below and come join Parker's Posse as a virtual walker or live walker :)

Tuesday, May 17, 2011

And the winner is...... Animas Ping

We decided on the Animas Ping pump for sweet Parker. He needs such small doses that we had to rule out the Omnipod, which I also really liked. He just have had a great customer experience so far with Animas. The pump is set to arrive tomorrow. We can play with it over the weekend and then we go to our pump training class next week at Children's with a Pump Live date of May 31st!!! So exciting that we will be official pumpers in two weeks.

Here is our little man getting ready for his first t-ball game with his handy-dandy side clipped Dexcom Seven to tell us how he is handling the exercise. We have discovered that running crashes Parker's blood sugar like you would not believe. But we are ready with carb loaded snacks and drinks on the side lines.

I can't thank you D-Moms enough for the advice and support. I actually met a sweet family at dinner the other night with a T-1 daughter. I hope she joins the blogging world soon so she can get some much needed support. She and I both felt like we weren't getting the support we longed for from the diabetes educators and doctors at the endo-clinic but I told her how great you moms and dads have been.

It is so nice to have the love and support from strangers that feel like family!

Friday, April 22, 2011

Pump Time.... Need Advice!

We made it through surgery to remove the lipoma from Parker's left side. He is doing really well and recovering a little too fast for me. I am trying to keep him down and resting but he is fighting me to get up and go! Yesterday we went to Pump It Up class at Children's Medical Center so that we can get the ball rolling towards getting a pump. We have it narrowed down to the Animas or Medtronic pumps because the Omnipod doesn't do small enough dosing for my little man. We love the Omnipod but need a basal rate of .025 so we can't use it. Bummer! We are pretty darn sure we are going to get the Animas but I wanted to hear from the DOC and hear what you pumpers like about your pumps.

Thursday, April 21, 2011

Surgery number three

Sweet Parker has surgery number three tomorrow. Three surgeries in barely five years of life. Tomorrow we will hopefully have an uneventful and quick surgery to remove a large fatty tumor on his left hip. They will biopsy it but we have been assured that these are benign 99% of the time! Please pray that our Diabetes doesn't cause any craziness tomorrow since he will go without food for quite a while. Everything seems a little scarier with diabetes.